GIRL WITH SWOLLEN HEAD.
JIRANIA KHOLA, India — A desperate Indian father whose young child
suffers from a condition that caused her head to swell up to an enormous
size said Saturday he is praying for a "miracle" to save her life.
Eighteen-month-old
Roona Begum was diagnosed with hydrocephalus, in which cerebrospinal
fluid builds up in the brain, just weeks after her birth in a
government-run hospital in remote Tripura state in northeast India.
The
potentially fatal illness has caused Roona's head to swell to a
circumference of 91-centimetres (36-inches), putting pressure on her
brain.
Her father, Abdul Rahman, 18, who lives in a mud hut with
his family in the village of Jirania Khola, told AFP he prays for "a
miracle" that will save his only child.
"Day by day, I saw her
head growing too big after she was born," said the illiterate labourer
who works in a brick-making factory.
Doctors told him to go to a
specialist hospital in a big city such as Kolkata in eastern India to
get medical help but Rahman, who earns 150 rupees ($2.75) a day working
in the brick plant, said he does not have the money to take her.
"It's
very difficult to watch her in pain. I pray several times a day for a
miracle -- for something to make my child better," he said.
The US
government's National Institute of Neurological Disorders and Stroke
estimates about one in every 500 children suffers from hydrocephalus.
The
most common treatment involves the surgical insertion of a shunt system
to drain cerebrospinal fluid away from the brain and towards another
part of the body where it can be easily absorbed into the bloodstream.
Cases
like Roona's, where the head has doubled in size in a relatively short
span of time, are extremely rare, according to leading Indian
neurosurgeon Sandeep Vaishya.
"It's difficult to assess the
situation without seeing the patient, but a surgery, even at this late
stage, would give her brain the best chance it has to grow and develop
normally," Vaishya told AFP.
Vaishya, who is the head of
neurosurgery at the privately run Fortis flagship hospital in Gurgaon, a
satellite city of the national capital Delhi, said that surgeries to
treat hydrocephalus cases are "not particularly risky".
Although
the cost differs from case to case, he estimated that a complex surgery
like this one would cost about 125,000 rupees ($2,300) and require a
three-day hospital stay.
Roona now is confined to her bed and
unable to move her head but she is a playful child, quick to smile and
giggle and is able to move her limbs, according to her father.
She has outlived an initial prognosis by doctors that she would survive only two months.
But her mother, Fatema Khatun, 25, says the little girl's health is getting worse and that she urgently needs help.
"She is deteriorating. She eats less and less, vomits often and I can see that she is getting thinner," Khatun told AFP.
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